Living with Trisomy 18 / Edwards Syndrome - our journey
This is sharing of an amazing experience our family had in caring for our youngest daughter born with Trisomy 18 also known as Edwards Syndrome. It was a venture into the unknown and after being told we were unlikely to take her home as her disabilty was said to be incompatible with life - there was little we could do but take one day at a time. In New Zealand Trisomy 18 was almost unknown, so as a family we felt there was little else we could do but love our wee girl and treasure each moment and day we had with her.
I have written this book pictured here on the right in order to relate how her disability impacted on family life and share all that Melissa taught us about life!
ISBN13 softcover: 978-1-4797-9350-1 ISBN13 ebook: 978-1-4797-9351-8