My blog - sharing our learnings
Belated Christmas wishes to everyone -I still find it a difficult time. Family is so important and there is little one can say - however our memories are so special and with us for ever!
Also I do hope 2019 is a great year for everyone!
Just sharing some feelings. Life changed me forever after the life and passing of our beautiful daughter Melissa.....maybe as I get older I understand more - not sure about that! But I know I see things differently from our experience, my values are different from a lot of our friends. Memories are still very clear and even sometimes a conversation can be difficult with someone who does not really know me. Living disability and with a fragile hold on life does change things and I feel I am still trying to understand that.
Today was a sad day as well as a celebration of a very special young girl. Aged 11 and Brennagh has blessed so many people by her short life, she has taught many about the true meaning of what is important in life. I was honoured to attend her service and celebration of her life....
Our Trisomy children are here I am sure to teach and educate - they are so special and have a huge impact on those who have time to spend with them.
A day full of special memories.
yes I know it has been a while since I have written anything. I realise how important it is to share our experience of caring for our children in the hopes we can help other parents. For us it was a scary journey and still today I am learning how much those 9 years of caring for Melissa has impacted on my life today. I have no regrets but feel I am still learing about life. There is some great sharing being done by families.
this is difficult to admit but it is very true. Having Melissa changed me for ever. Caring for her 24 hours a day for 9 years changed how I think about so many things it may be difficult to explain. Life is different, I know I see things differently , my values are different from others and it can make it difficult in your everyday life. Moving on you are a different person and for me I find it difficult to fit back into what is/was a normal life.