I just need to say here in 1988 our family did not have a computer! There was no need at that time - not even sure if they were readily available. Finding information on Trisomy 18 was crucial to me so it was Parent to Parent New Zealand, I
contacted in the first instance (when I found the time). I was put in contact with a New Zealand family who were very generous and happy to share all they knew and had learnt. It was many years later that I had access to the internet and found
out that overseas many children were surviving and that families were sharing all they learnt with each other. I did learn about the SOFT network / support and used to wait eagerly for their newsletters from America...they taught me so much...all the stuff
I needed to know.