I came across an earlier writing of mine - hence the sharing of it!
How do you fit
a square peg into a round hole? With great difficulty! A simple illustration - akin to the adaptions needed for a disabled person to fit into an able bodied world. Our family learnt this with first hand experience. Our youngest child
was born profoundly disabled - we were told. Incredibly naive - first thoughts were just that she live. The disability created many challenges - eating - drinking - walking - running - playing - sleeping and talking. To you and me these tasks
almost managed automatically withy little thought or planning! To drink - special teats, eye dropper, teaspoon, milk, soybean milk, controversy! To eat food
- most of us can eat any food - maybe with a few dislikes. Her disability created huge challenges around food - everything mattered i.e. colour, consistency, brand - at times I pushed our boundaries THE RESULT vomiting THE RISK aspiration
pneumonia. Mealtimes for you and me usually 3 times a day - adaptions needed = 7 meals a day - often taking an hour at a time. This really affected family life. Thw success of the day was measured by the FOOD INTAKE managed / achieved! Running never a possibility Walking never like you and me but walk she did At about age 7 with INCREDIBLE determination
- a walking frame - a support person and a face of beaming smiles. Playing for a child - the way of learning. Imagine needing someone to help you to play? Disability can cause dependence - dependence not always understood - PLAY for
a child is usually all day long. Our wee girl could only play if people could help - people were paid to assist her to play. RESULT - a face beaming with smiles - Worth it? need I say more.
not like you and I. The first 3 years it was unusual for her to settle before 2.30am - in later years that was to improve - earlier than midnight. It was the disability causing that. Obviously huge adaptions were made by our family
to accommodate this. The whole family felt disabled. Looking back I know we learnt a lot and taught a lot about accommodating disability in the able bodied world. Fitting the square peg into the round hole.
this increase your awareness of the disabled as it did for us!