Sharing our learning
🙂 wishing you a Happy and fun 2018.
looking back I realise I spent a lot of time making special memories and creating fun times - knowing we may not have a long time together. I feel that started at the hospital when we were given so little hope. Reading our story I realise Melissa's needs were indeed 24/7 and I guess I reliase now that took it's toll on our family life. I still know we did the best we could and we did get smiles and giggles daily.
🙂We took Melissa to Napier to visit hubby’s sister. At age eight and a half it was just awesome watching Melissa playing with their granddaughter. We realised how much Melissa had grown and we observed the progress she had made. It was a special day. They both watched the video The Wizard of Oz and we were amazed to see Melissa so engrossed, age appropriate and happy.
From that day on videos were introduced into her programme and soon she had her favourites. She loved the Our World Series and in particular the penguins. We played them over and over for her and Lord of the Dance was another favourite.
More progress was made as Melissa mastered sitting confidently astride a green roll provided by her therapist!
The worst thing for us was when Melissa started to cry. Very quickly she would start vomiting. This we were warned by our paediatrician could put Melissa at risk of aspiration pneumonia. Vomiting was the last thing I could cope with when feeding Melissa was always our greatest challenge.
For some time I did not realise that the vomiting was also attributed to constipation. In those days we did not know about or understand this. I learnt and understood more about the vomiting constipation problem when I was spending time with another mother who had a high needs child. Constipation contributed to the vomiting.
The information I needed was not out of a textbook, but from the experiences of other mothers.
there are further tips we learnt throughout my sharing on this website!